Lack Of Specialist Staff Is Leading To Quality Of Life And Sexual Wellbeing Problems For Bladder Cancer Patients
28 May 2021
Extensive research project from charity Fight Bladder Cancer finds bladder cancer patients’ quality of life and sexual wellbeing is being impacted by a lack of specialist staff to provide them with the care and support they needread more here ...
Thursday 6 May 2021
As Bladder Cancer Awareness Month kicks off, the National Institute of Health and Care Excellence (NICE) has announced that it is not recommending avelumab (Bavencio) for use as a maintenance treatment for people with locally advanced or metastatic urothelial (bladder) cancer after chemotherapy. This is deeply disappointing, and we urge NICE and the manufacturer to continue discussions. There are currently no maintenance treatments - treatments that can slow the rate of cancer and stop it progressing - routinely available for these types of patients on the NHS.
Professor Alison Birtle, oncologist and trustee at Fight Bladder Cancer said “This is a plea to NICE and the manufacturer. Please continue your discussions and resolve your current uncertainties around cost-effectiveness. Patients are not numbers - this drug can give them good quality time and is the biggest change in bladder cancer management we have had in decades. This decision, if it stands, will be hugely disappointing to so many patients with bladder cancer, who could see their lives greatly extended if they had access to this drug. Whilst other cancers have seen life extending drugs funded time and again, bladder cancer survival has not improved over the last 20 years in the UK.”
Although NICE agreed that “clinical trial evidence shows that if people take avelumab it takes longer for their cancer to get worse, and they live longer than if they have best supportive care”, NICE stated that “the most likely cost-effectiveness estimates are much higher than what NICE normally considers an acceptable use of NHS resources”.read more here ...
9 November 2020
Patient-led charity, Fight Bladder Cancer, has launched the first ever suite of ten booklets designed to provide bladder cancer patients and their families with the help and information they need about every stage of the disease.
- read more here ...
Affected by bladder cancer? Come and join us at our online Zoom support groups.read more here ...
Display a car sticker to raise awareness of bladder cancer and the help that's available from Fight Bladder Cancerread more here ...
We are incredibly grateful to everyone who financially supports us; every penny of the money that is donated or given from fundraising is spent with care to support those affected by bladder cancer.
One of the ways that you can do this with Facebook fundraisers and they're a really easy way to raise money for Fight Bladder Cancer. So, if you've got a birthday or celebration coming up, please consider using this opportunity to help us.read more here ...
Sign up and join the Halloween fun!
Run 5k with family and friends - all ages and abilities are welcome to join in and there are medals and goodie bags for all finishers!
Run anytime between now and October 31st - check out the link below for details of how you can help Fight Bladder Cancer receive a £250 donation!read more here ...
If you run a GP surgery or Private Practice, we have free posters about the signs and symptoms of bladder cancer and the support that's available #BeClearOnCancerread more here ...
Charity Checkout has become "Enthuse"
You may have received an email from Enthuse. This is the trusted payment platform that Fight Bladder Cancer uses, formerly known as Charity Checkout. They have changed their name and branding. This will not affect you, our valued supporters, in any way and your login details remain the same. We do trust Enthuse to process all of the donations made on our website.
Thank you for your continued supportread more here ...
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