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Get help: COVID-19 Coronavirus

We know that it is currently a worrying and uncertain time, but we are here to support you.

WEE ARE FAMILY. Whether you need someone to chat with or information on staying connected during this challenging time, we're here to support you.

Some of the guidance listed below was developed by One Cancer Voice and Cancer 52 in partnership with NHS England. Fight Bladder Cancer is a proud member of Cancer52.

Where can I find support during the pandemic?

We are not currently hosting any face-to-face support groups, however we would be delighted to help you set up an online support group via videoconference. Please contact getinvolved@fightbladdercancer.co.uk.

If you would like an online bladder buddy, please contact support@fightbladdercancer.co.uk

If you have any questions or concerns, please visit our private online forum, email us, or phone us on 01844 351621‬.

What is COVID-19?

COVID-19 is a new virus that can affect your lungs and airways. It is a type of virus called coronavirus. The symptoms of coronavirus are a cough, a high temperature, shortness of breath. These symptoms do not necessarily mean you have the illness.

Transmission occurs primarily from coughs and sneezes within a range of about 6 feet (1.8 m). Indirect contact via contaminated surfaces is another possible cause of infection.

Your questions answered

Here we address some of the most common questions from bladder cancer patients in related to Covid-19. If you have any additional questions please just drop us an email or call us on 01844 351621.

What should I do if I have cancer symptoms?

Cancer hasn't stopped. Contact your GP if you have:

Bleeding that doesn't come from an injury
Weight loss / loss of appetite
Pain / infection that won't go away

If you have cancer, you will get checked & treated. The NHS will give you the care you need.

Will my bladder cancer treatment be changed?

We know that everyone in the NHS is working unbelievably hard, and that many of you are now being called in for your previously postponed treatments and procedures. In the event however of any disruption, clinicians will always make decisions to prioritise treatment for those most in need and the focus will be to help those most at risk.

You might have questions like "How should I contact my urology team?", "What happens if I am self-isolating?", and "What happens if my appointment is cancelled?". The British Association of Urological Surgeons (BAUS) have published answers to these and other questions on their website.

Many hospitals have been using telephone or video consultations as a way of helping people to avoid long waits in clinics and for treatment. You may be called to arrange your treatments in this way, and planned treatments may need to be moved to help with running a smooth service.

For more information, health care professionals can see the NICE guidelines for delivery of systemic anticancer treatments and the NHS Clinical guide for the management of non-coronavirus patients requiring acute treatment.

If you receive notification of postponement of your treatment, rest assured that your Urology team will be doing their utmost to reschedule regular treatments and check-ups as soon as possible.

Many of you are understandably concerned or expressing anxiety. There are people who will continue to care for you. Please know, particularly at this time, that you are not alone.

I am on chemotherapy. If I experience sweats/ cough/ shivering should I call NHS 111 or the chemotherapy care line?

You should call the chemotherapy care line.

If I need to self-isolate for more than seven days, what will happen in relation to treatment that has to be done weekly?

Your clinical team are best placed to talk with you about the effect on your treatment and appointments. They will work with you to determine the best course of action in each individual situation.

I have been exposed to the virus and am a carer for someone with cancer. What should I do? Who will look after the person I care for if I am unable to?

The Government is currently advising that if you have symptoms and you live with a vulnerable person, you should try to find somewhere else for them to stay for 14 days.

If you provide essential care (such as help with washing, dressing, or preparing meals), you may find this government guidance on Home care provision useful.

It is also a good idea to think about what happens if you become unwell. If you need help with care but you're not sure who to contact, or if you do not have family or friends who can help, you can contact your local council who should be able to help you. Carers UK have also produced advice for those currently caring for others

Reduce the risk of infection

Some people with cancer are more at risk of becoming seriously ill if they contract the COVID-19 infection.

Preventive measures to reduce the chances of infection include: stay home, avoid travel and public activities, wash hands with soap and hot water often, cover nose/mouth with a tissue if coughing or sneezing, and avoid touching the eyes, nose, or mouth with unwashed hands. Physical distancing strategies aim to reduce contact of infected persons with large groups by closing schools and workplaces, restricting travel and cancelling mass gatherings.

Your mental health

Coping with social distancing and self-isolation

We acknowledge the mental strain that social distancing will have on people. You may be well enough to do some tidying up around the house, or do some DIY jobs that have been on your list for ages. Perhaps you could catch up on the box set you haven't yet watched, or learn a new hobby or skill by following some online tutorials.

Exercise is important, so try to continue with your usual activities as far as possible, or substitute them for something you can do at home. Don't forget that putting on your favourite music and dancing is a great way to exercise and it can make you feel less anxious too.

Some more strategies to help this include:

Joining the Fight Bladder Cancer online private forum
Calling, video-chatting and messaging friends and family
Watching TV and movies
Writing, scrapbooking, and reading
Knitting, crocheting, de-cluttering, and gardening
Yoga, mindfulness meditation, and 10-minute workouts
Playing games, solving jigsaw puzzles, building Lego and creating art
Listening to podcasts and audiobooks, watching YouTube

For more tips, please see the iPsy-19 Psychological TIPS to cope with COVID-19.

Financial help

These changes could have financial implications for many people. If you are concerned, you should contact your employer, mortgage provider or relevant organisation. The Citizens Advice Bureau will also be able to help.

Current Information & Guidance on COVID-19 for the UK:

England | Wales | Scotland | N.Ireland

How do I talk to younger people about the coronavirus?

For advice on how to talk to younger people about the coronavirus, you may wish to see the advice from the American National Association of School Psychologists.

Where can I get support?

If you have any questions or concerns, please visit our private online forum, email us, or phone us on 01844 351621‬.